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The all-in-one patient registry software

Create a clinical, disease, or rare disease registry that researchers and patients love, all under your own brand.

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patient engagement

Used by leading research and medical institutes.

Build Any Type of Patient Registry

A patient registry can be built around a disease, a therapy, or a service. WeGuide supports them all on one platform, from small rare disease communities to large clinical registries.

Disease registries

Track everyone with a condition over time to study its natural history and outcomes.

Explore disease registries

Rare disease registries

Reach small, dispersed populations and support natural history and drug development, proven on the FSHD registry.

Explore rare disease registries

Clinical registries

Collect structured clinical data, outcomes, and ePROs for research and quality improvement

Read the software guide

Product and post market registries

Follow patients on a therapy or device to generate real world evidence for regulators and researchers.

Registries and real world evidence

Trusted for Patient Registries at Scale
6,000+

participants supported on a WeGuide registry app in the BRACE trial with Murdoch Children's Research Institute

90%+

participant adherence sustained across the BRACE study

100,000+

families enrolled in the GenV longitudinal cohort

FSHD

rare disease registry delivered end to end for FSHD Global

Create patient registries that support diverse patient inclusion, engagement, and participation.

WeGuide is patient registry software that simplifies the creation and management of clinical, disease, and rare disease registries, giving you a single patient registry platform with all the tools you need for inclusive participation. With features like multi language support, mobile friendly interfaces, and dynamic eConsent, it is easy to include diverse patient populations in your registry. As a clinical data registry solution, WeGuide helps researchers gather comprehensive data and advance scientific discovery with confidence.

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Hear what our clients have to say!

"WeGuide has transformed how we engage with our community. The platform made it simple to launch our air quality monitoring study across 15 neighborhoods in just three weeks."
Susan Clifford
Susan Clifford
Senior Research Officer
GEN V logo
“The multilingual support was game-changing. We reached citizens who were previously excluded from research opportunities, resulting in a truly representative dataset.”
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Kaya Gardiner
Trial Project Manager
Murdoch children Research Institute
"WeGuide has transformed how we manage our patient registry. The ease of digital screening and obtaining eConsent has significantly improved our workflow."
Emma Photo
Emma Weatherley
Managing Director
FSHD Global
"The WeGuide trial offers staff a practical tool for recording daily COVID-19 symptoms and temperatures. For those in high-risk areas, daily reminders and alerts provide peace of mind and reassurance about their health."
KATE Cranwell
Kate Cranwell
Manager
Western Health
"It’s obvious that WeGuide is committed to develop technology that benefits people in the community. WeGuide has been a great partner in achieving this goal within Western Health."
Testimonial Photo
Paul Eleftheriou
Chief Medical Officer
Western Health

Security and Compliance Built In

WeGuide is TGA Class I certified medical device software and supports GCP aligned data capture. Registry data is protected with encryption, audit trails, and role based access controls. The platform supports HIPAA, GDPR, and 21 CFR Part 11 aligned workflows.

HIPAA aligned

GDPR aligned

21 CFR Part 11       

TGA Class I certified       

Questions

Find answers to frequently asked questions about using our registry that researchers and patients love - all under your own brand data.

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What is a patient registry? How can WeGuide support it?

A patient registry is a database used to collect information about individuals with specific conditions or health characteristics over time. WeGuide simplifies the creation and management of registries, from data collection to participant engagement, so the process stays efficient for researchers.

How can I create a patient registry with WeGuide?

WeGuide makes creating a patient registry simple with customisable tools for data collection, dynamic consent, and participant onboarding. Whether it's a clinical registry or a rare disease registry, our platform adapts to your needs, with a simple setup and easy management.

Can WeGuide handle rare disease registries?

Yes, WeGuide is ideal for rare disease registries, offering flexible tools to collect comprehensive data, manage small participant groups, and support long term engagement through reminders, updates, and consent management.

How does WeGuide improve participant engagement for patient registries?

WeGuide improves engagement by offering features like automated reminders, surveys, and regular updates. Our patient registry system keeps participants involved and motivated throughout the study.

Can I manage multiple research registries with WeGuide?

Absolutely. WeGuide enables you to manage multiple patient registries within one platform. Easily organise different participant groups, tailor consent forms, and customise tasks for each registry.

How does WeGuide ensure compliance in patient registries?

WeGuide complies with international data privacy standards, offering secure storage, encrypted communications, and dynamic consent tools to help patient registries meet all regulatory requirements.

What types of data can I collect using WeGuide for my clinical registry?

With WeGuide, you can collect a wide variety of data, including demographic information, health outcomes, surveys, and biometrics, for a comprehensive view of participants in your clinical registry.

Can WeGuide integrate with other systems for my patient registry?

Yes, WeGuide integrates directly with external platforms such as electronic health records (EHR) systems and genetic testing services. This allows for enriched data collection and simpler workflows in your patient registry.

How does WeGuide help with long-term patient retention in research registries?

WeGuide keeps participants engaged over time with features like behaviour-driven notifications, educational content, and progress tracking. These tools are particularly useful for long-term research registries.

Does WeGuide support international patient registries?

Yes, WeGuide is designed to support multi-language studies and international research registries, ensuring accessible communication and participant engagement regardless of location or language barriers.

How does WeGuide's patient readiness hub streamline participant management for clinical registries?

WeGuide’s patient readiness hub ensures participants who are pre-screened and ready to join a trial are engaged and organised efficiently. This system provides automated updates, reminders, and educational resources to keep participants informed while they await the next steps, reducing dropout rates and enhancing readiness.

Can WeGuide help manage rare disease registries effectively?

Yes, WeGuide is ideal for rare disease registries. It simplifies patient engagement, screening, and long-term data collection for rare conditions. With features like customised consent forms, multi-language support, and automated communication, WeGuide ensures that rare disease research is streamlined and inclusive for diverse populations.

What is the difference between a patient registry and a clinical trial?

A patient registry is an observational database that follows people with a condition over time, while a clinical trial tests an intervention under a fixed protocol. Registries run longer, enrol broader groups, and often feed real world evidence. Our guide to patient registry vs clinical trial breaks this down, and WeGuide supports both in one participant app.

What is a disease registry, and how is it different from a patient registry?

A disease registry tracks everyone with a particular condition to study its natural history and outcomes, while a patient registry can be built around a condition, a product, or a service. In practice the terms overlap. Our guide to disease registries explains the types and examples, and WeGuide builds either on one platform.

How do patient registries support real-world evidence?

Patient registries collect long term, structured data on real patients outside a trial, which makes them a trusted source of real world evidence for regulators and researchers. See our guide to patient registries and real world evidence, and WeGuide helps you capture that data reliably.

What is a patient registry database?

A patient registry database is the structured store behind a registry, holding participant records, consent, outcomes, and follow up data over time. Our guide to what a patient registry is covers how the pieces fit, and WeGuide provides the database, app, and consent tools together.

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